a signal grace

This weekend I was listening to a podcast and heard the term ‘signal grace‘ for the first time. I didn’t know what that meant, so I looked it up and had an “ahh moment”.

It is a Catholic term and promised to those who pray the rosary. Being raised Southern Baptist, I didn’t know traditions, but was determined to find out the scoop.

I had never really thought about the term, signal grace, but in my own life I have experienced these and called them, “God moments” when God shines a light on something that is happening in my life and speaks to my heart.

For example … my own God moment/signal grace has always been birds. When my son passed away, I had 3 different occasions where birds were involved. One in particular was in California, just two days after his funeral. I was walking on Coronado Island in the early morning and telling complaining to God how awful I felt and how no one understood the pain of losing their son……..and He sent a bird.

Yes. He sent a bird. Into my hair.

It came out of nowhere and swooped down onto my head and as I reached back to swat it away, God instantly, YES INSTANTLY, showed me His son on the cross. Sooo….yes, He understood my pain. And in that moment after the bird flew away, I had to smile. Ok. Oooops.

My God in heaven knows pain. Jesus knew pain. I’m not the only one with problems or pain and only have to turn on the TV to see all the hurt.

That was just one moment with birds. Several other moments happened and always made me smile. These were my signal graces.

I like to get up early for my time with the Lord and this morning it was still quite dark outside and as I sat reading His Word, a bird outside my window was singing his little heart out! In the dark!

Once again, God showed me how even in the darkness, I should be singing.

Our world seems to be crumbling around us, but it’s not up to me to sit and worry. It’s not up to me to try and figure out the answers to what is going on across the globe. It’s my job to sing in the darkness.

So, no matter what comes our way …. sing. The Lord may want you to act, but in your sacred duties, sing like the little bird in the dark. Read His Word and know you are loved.

things my special needs son taught me …

2022 marks the 19th year of my son’s passing.

How is it that 19 years seems like eternity and yesterday all at the same time??

Sometimes I try to imagine what he would be like at age 35, but I don’t stay there long because those thoughts can lead me down a long, dark tunnel wondering all the why questions and turning my spirit inward.

Instead, I thank God that he is whole in heaven! He’s not hidden away somewhere so Covid can’t touch him. He’s not in pain or restrained in his wheelchair. NO! He’s running! He’s dancing! He’s able to see and eat the most glorious food imaginable AND … he’s in the presence of Jesus.

This is how I am able to put one foot in front of the other.

This is how I am able to stand firm in my faith knowing I will see him again.

So what did this little guy teach me in the 15 1/2 years he was mine? Much….

First of all, Clay was blind. He couldn’t see the color of anyone’s skin, he listened to their voice and you could easily see in his expression who made the cut and who didn’t. To Clay, color doesn’t matter.

Secondly, Clay was confined to his wheelchair. In this he taught me patience. He didn’t know how to change his position in his chair so I became aware of the time he spent sitting and would either shift him to a new position, or perhaps lay him in his bed. I feel like I’m constantly moving, shifting my weight … never quite sitting still, so during the night I would get up many times to turn him so he wouldn’t be sore.

Thirdly, Clay taught be about total dependence. Where Clay relied on total dependence on me, I have learned to have total dependence on God. Clay entrusted me to carry him from one place to another and God has carried me the same way. I cannot imagine those years without the love of Jesus holding me tight … giving me strength … showing me how to care for this child that had faith in me, his mother.

Other things I learned along the way was that some (most) things Just. Don’t. Matter. But knowing that I matter to my Creator is all I need.

Psalm 91:1 says that ‘those who live in the shelter of the Most High will find rest in the shadow of the Almighty.”

I miss my son completely, but my faith in the One True God has never wavered. I find rest in Him.

Special Kids, Chosen Moms

According to the CDC, about one in every 33 babies is born with a birth defect. When our son contracted Group B Strep on his 3rd day of life, we became a part of that statistic.

My beautiful child, Clay, was blind, had cerebral palsy, was fed via G-tube with a 24 hour feeding pump and took as many as 32 medications a day.

Because of my journey, I have written a practical and supportive guide to help prepare, organize and encourage mothers as they voyage through a new season in their life. My hope is to remind mothers of God’s love and to appreciate that they are ‘chosen’ by our heavenly Father to nurture these little ones.

In this book I help mothers face many difficult decisions regarding, healthcare, schools and respite, organizing the household and even recipes and scriptures to feed the soul.

You can find my book on Amazon (free on Kindle Unlimited) or Barnes and Noble online.

no worries…

Is 2020 over yet?

What a crazy year!!

At first I was worried about the ‘season finale‘ with the election coming up and Covid spewing out it’s cooties in the air .. and with all the conspiracy theories popping up all over the internet … STAAAAHHHPPP!!!

I hear my mother’s voice saying, “Settle down. Stop worrying.”

Isaiah 8:11-13 says, “The Lord has given me a strong warning not to think like everyone else does. He said, “Don’t call everything a conspiracy, like they do, and don’t live in dread of what frightens them. Make the Lord of heavens armies holy in your life. He is the One you should fear. He is the One who should make you tremble. He will keep you safe.”

So there we go.

Don’t get angry because someone has different views than you. It would be a boring world if everyone thought the same way.

Be kind.

Don’t worry.

He’s got this.

Rules for the caregiver…

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Being a caregiver is not an easy job.  It means putting someone else’s needs before your own.  It means becoming selfless.

Paul wrote in Philippians 2:4, “Let each of you look not only to his own interests, but also to the interests of others.”

I was a caregiver for 15 1/2 years with my son, Clay.  I remember (far too many times) doing things robotically, failing to really see him.  Hurrying to finish one task so I could finish more.  Sigh….

So, I’ve come up with some guidelines to be sure we are ‘looking to the interests of others’ and not just checking off a box on our To Do List.

1.  SHOW UP – Really be there. Are you listening to your child?  Start your day fresh.  Begin with prayer and ask the Holy Spirit to show you their needs.  Are you rushing through your duties?  Pay attention to what you are doing and drop your phone, in fact, drop everything.  Put your needs aside and remember you are on their schedule, not yours.  Watch their body language.  You, as their mother and caretaker, know them better than anyone.  You could possibly be their only mode of communication with others so you need to be ready to voice their concerns.  If you are texting, or checking what someone had for lunch on Instagram, you are going to miss a special time with your child.

2.  CHECK YOUR MIRRORS – I’m sure you’ve noticed on your car door mirrors the sign that reads, “Objects are closer than they appear”.  Let’s go with that for a minute.  Have you checked your mirrors?  What about your face…what about your body language? What does your face say when your little one needs you in the middle of the night….again? Are you walking into their room with anger because you’re not sleeping?  Guess what?  They aren’t sleeping either.  Don’t you think that a quality night of sleep is something they want too?? For children with special needs the difficulty is compounded by their limited control over their bodies and problems with communication.  Try to empathize.  They are looking to you, their mother, their caregiver for help.  Does your face show anger?  Stop. Is that the look you would want to see when you are in pain or afraid?  Pray with your little one and remind him that Jesus loves him and will never, ever leave him.  Let him feel the sense of peace that has overtaken your mind and spirit.  The way you relate to him will influence how well he can cope with his own fears.  In Luke 12:6 Jesus says that God doesn’t forget even a single sparrow – How much more does He care for us?  Our circumstances – our child – our life has been ordained by God.  God does nothing…or allows nothing…without a purpose.

3.  CLEAN OUT YOUR CLOSET  – Get rid of anger, impatience, and other respectable or subtle sins.  Worry is a sin.  I know, it doesn’t seem like a very big sin….but sin is sin.  I also know that as a mother of a special needs child, it is very easy to worry about their future and what would happen to them if you were not around.  I get it.  But there are ways to insure your child can have the best care if you were, let’s say, unavailable… It is going to take a bit of work, but trust me.  THIS is important.

Begin with a daily schedule.  Write down every single thing you do starting with  walking into their bedroom in the morning (do you sing to him when you see him?  Are you the mom that says, “Wakey, wakey, eggs and bakey”??) Write it down!  That may be the little something that your child looks forward to each morning!  Do you open the blinds?  Write it down!  At bathtime, do you lay his clothes out on the bed or take them into the bathroom?  Does he help with his bath or brushing his teeth?  Does he like a little, tiny speck of toothpaste and  can he comb his own hair?  See?  These are little things that you do each day and probably do a bit robotically.  The point is that someone else needs to be able to walk into his room and do these things exactly as you do them.  These small things can be the difference between a good and bad day for your little one.  Keep his daily schedule in a folder to make it easy for someone to take your place in case you are sick or gone.  Yay!  One less worry!

4.  STORE UP SUPPLIES – Memorize scripture!  This is our ammunition against:

a) discouragementJohn 14:1, “Let not your heart be troubled; you believe in God, believe also in me.”

b) worry  – 1 Peter 5:7, “Casting all your care upon Him, for He cares for you.”

c) lonelinessPsalm 147:3, “He heals the brokenhearted and binds up their wounds.”

d) depression2 Corinthians 1:3-4, Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our tribulation, that we may be able to comfort those who are in any trouble, with the comfort with which we ourselves are comforted by God.”

Play Christian music.  Let God’s peace rule in their hearts!  There are beautiful CD’s of Scripture Lullabies that can be played throughout the day.  Where loud, chaotic music can excite and frustrate little ones, peaceful scripture music can soothe.  And you are putting God’s Word in their hearts!

Read your Bible out loud to your child.  Children love stories and Bible stories have such truth about God and how much He loves little children.  When you are filling your cup (which is almost always empty) you are filling theirs too.  Enjoy the nearness of God.

5.  TURN ON THE LIGHTS – Reflect Jesus!  Be an encourager because everyone loves praise!  Tell your special child how he has the sweetest smile and tell him why you love him so very much! Remind him that as much as you love him, Jesus loves him even more!  Read Psalm 139 and let him know he is “fearfully and wonderfully made.”

How much time does your little one spend in his room?  Open the curtains, clean up the room and make it a relaxing place to be.  Place all the little stuffed animals and bright toys where he can reach them.  Use a laundry basket on the floor so they can also be picked up easily and placed back inside.  Does your child love flowers?  Don’t wait for a special occasion.  Place colorful, happy flowers in a vase where they can be easily seen.  If you don’t have access to fresh flowers, cut them out of magazines to paste in a book or on the wall where he can see them.  The important thing is to have a clean, joyful room; a room where he feels safe, loved and protected.

6.  LIFT WEIGHTS – Get rid of anger and get rid of guilt.  As mothers, we are very prone to those guilty feelings of “its my fault”, or “if only” thoughts.  Don’t be paralyzed by your past.  It’s over.  It’s done.  Let’s move on.  Give thanks in all circumstances.  Ephesians 5:20 says, “always giving thanks to God the Father for everything, in the name of our Lord Jesus Christ.”

Guilt means you’ve done something wrong.  We all have some sort of guilt over something we did or didn’t do in our past.  That’s why we see so many people turn to alcohol, drugs or some other ‘numbing’ vice.  Our desire is to push it back and forget it somehow.

The effects of guilt are toxic.  The last thing we want to do, as mothers, is project any of our guilt onto our little ones.  Here are some examples of the effects:

  • feelings of rejection
  • projection of your feelings onto other people
  • inability to say no
  • depression
  • anxiety
  • blame shifting…etc.

Until we truly understand what Christ did for us 2000 years ago – we will never be set free!! Jesus paid the price for that sin and you don’t have to live under that condemnation!  (Read Romans 3:9-11, 24, and 27.)  Understand your wrongs and accept God’s forgiveness.  He is extending grace and mercy to you, and once you ask Him for forgiveness, in the spirit of Frozen, LET IT GO! When it comes back to mind, take it as an opportunity to thank God again for this gift of forgiveness.  Satan would love to keep throwing this back at you – but as Daughters of the King, we have His grace, His mercy and His forgiveness.  You don’t need to keep asking for forgiveness for the same sin over and over.  Have you ever been with someone that re-hashes the same old, tired story over and over?  Imagine what God is hearing when we keep bringing up our same old, tired story to Him!  One and done, people!!

When you realize the forgiveness that comes with being a Christian and accepting Him into your life, you can stand taller…..you can smile longer….and you will have a light about you that no one can put out!  THAT is what your child needs to see!!  THAT is what you want to see in your mirror each morning and that is something your family needs to see also.  When we pair our positive thoughts and ideas into our children about their importance and about God’s love and forgiveness, we will change.

Simple rules.  Undying love.

 

 

special kids, chosen moms…

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Finally!  I have finally finished writing a book that has my blood, sweat, tears and more tears all over it.  (ok, not literally) and it is listed on Amazon HERE.

If you didn’t know, I had a beautiful child that contracted Group B Strep on his 3rd day in this world.  Within weeks we discovered he was blind, had cerebral palsy, a severe seizure disorder and was fed via a G-Tube with a 24 hour feeding pump.  This little guy took over 32 medications a day and decided to stick around for 15 1/2 years!  He was an amazing child that grew to be over 5 feet tall and certainly kept me in shape!

In my book, I am hoping to help other mothers of special needs children as they take care of their own.  It’s a practical guide with information regarding healthcare, schools and respite, organizing the household, travelling and laced with Scriptures throughout.

My own journey was made easier by allowing God to walk with me and help me make it day by day and hour by hour.  I cannot imagine this season in my life without Him to lean on.

Please take a moment to look at the book and let me know what you think.  I’m hoping that by helping mom’s of special needs children physically, that God can lift them up spiritually and lead them closer to His grace.  I want God’s peace to infiltrate your home, your life and the life of your little one.